This is my third and final blog in the series for NHS Professionals and at the end of blog two I hadn’t decided what it’s focus would be. Due to a number of reasons I have decided to make this post about thanks; saying thank you every day is something I advocate wholeheartedly and I believe those two words can make a real difference to people’s days.
Florence Nightingale Foundation (@FNightinagleF) and NHS Professionals (NHSPBank)
Thank you so much once again for providing me with the Scholarship which allowed me to complete my MSc Nursing Studies with Oxford Brookes University (@OBU_Nursing). I completed this course entirely through scholarships so if you aren’t in a position to self-fund, it is still possible to do; if I can do it, so can you.
Locally at the James Paget University Hospitals NHS Foundation Trust @JamesPagetNHS
Research Facilitators – huge effort and a great amendment week
Jamie Preece (@JamieP1982), Sarah Daniels (@SarahDaniels6), Nadine Baldwin & Karen Reavell (@researchkarenr) Head of Research closed the office for the w/c 4th July 2016 in order to concentrate on reviewing amendments for research studies which are currently recruiting patients @JamesPagetNHS. They worked extremely hard and deserve a huge thank you not only for their efforts throughout this week but also for the tireless work they undertake on a day to day basis.
Clinical delivery team:
Dr Carlo Canepa (PI) and Christian Hacon (Clinical Research Nurse) have developed our stroke research service alongwith other stroke colleagues and have a great rapport with their patients. Despite one of their studies being particularly difficult to recruit to (http://www.phri.ca/research-study/navigate-esus/), Christian and Carlo have worked out different strategies to identify patients to ensure they do not miss out on the opportunity to participate. As a result more patients are aware of and taking up the opportunity.
I mentioned paediatrics in my last blog as my personal involvement in this increased over the past couple of months. The wonderful Ally (Clinical Research Nurse) is now back and working really hard to ensure opportunities are available to children and their parents. Last week three newly diagnosed children (& their parents) took up the chance to participate in a study called Address2 http://www.address2.org/ Well done to Ally and the Paediatric Clinical Nurse Specialist team @JamesPagetNHS for making research visible.
Elva (Clinical Research Nurse) set-up an induction alongside our research booklet for one of our new clinical research nurses, Teresa who has been in post about 4 weeks now. Elva has provided Teresa with training, support and challenges since she started and Teresa is now in a position to start leading on studies herself. She will be focusing on Obs & Gynae, ENT and supporting some other areas. A big thank you to Elva and a warm welcome to Teresa. Elva is also the team link for pre-registration student nurses
Learning disabilities #LDWeek16 – Rebecca Crossley
We supported the wonderful Learning Disabilities team @JamesPagetNHS throughout learning disabilities week. Celia, Abby and I even learnt some sign language
You can see a snippet of their learning in this video: https://www.youtube.com/watch?v=XKj70kisOKE
The whole research team
I’d love to name people individually but there are so many of us now and I’m mindful of my word-count. A huge thank you to everyone within the team and across the Trust for being the best team with great values and commitment, you are all brilliant @JPUHResearch & @JamesPagetNHS.
NIHR Leadership Programme
2016 is the inaugural NIHR Leadership Programme for Clinical Research Delivery staff and I have had the pleasure of working with Esther Thomas (Workforce Development Lead, CRN:Eastern) and Fiona Maxton (Research Delivery Manager) in shortlisting applications. We are interviewing in the next couple of weeks and it’s exciting to see how this develops over the coming six months.
UK Social Media Research Strategy
I was invited by the @Wenurses and Canterbury University teams to meet and discuss the potential of a social media for research UK strategy last week. What a day! One of the most exciting and inspiring days I’ve ever been part of. Great people, great ideas, great enthusiasm & huge potential. A very big thank you goes to twitter for connecting me with some amazing people. To be kept posted on developments and opportunities regarding this, please follow me on twitter @ClaireW_UK
As this is all about thanks, I’ve decided to leave the last word from blog no 3 to one of our incredible patient’s, John – here’s his story (supported by his wife, Pauline)…
The CAROLINA study is a phase III, international, multi-centre double-blind study within the area of diabetes and is trialling a new medication. The aim of the study is to investigate the longterm impact on cardiovascular morbidity and mortality, relevant efficacy parameters (e.g., glycaemic parameters) and safety (e.g., weight and hypoglycaemia) of treatment with linagliptin in patients with type 2 diabetes at elevated cardiovascular risk receiving usual care, and compare outcome against glimepiride.
How did you become involved in the study?
I had a heart attack and was treated at Papworth Hospital & developed diabetes after that, some years ago now. I was so pleased with the treatment I received at the James Paget generally, and was offered the trial. I went from death’s door to how I am now. I had a letter from my doctor about the study and a phone call from one of them to see if I was interested. Had an appointment booked with my doctor to discuss it and he said it was him who put me forward. I normally see the practice nurse twice a year, once for my heart and the second for my diabetes, my MOT. In the trial I see Helen and Jane so more regular check-ups.
What has your experience been like?
Pretty good! The nurses and doctors are all so friendly and nice. It’s so worth doing. We’re retired too so that helps because we don’t have to fit it around work or anything. I’ve been on it three years now and always enjoy coming in.
How did you feel about being approached to participate in research and the consequent visits you’ve made?
I was really happy to take part. How do people learn and get medicines better for people without this? Its nice getting looked after and being seen to be kept an eye on. Helen (Research Nurse) is so, so lovely and easy to get on with – we talk about our holidays and she’s just been climbing. Jane (Research Nurse) is really lovely too – she covers Helen when she’s off. Dr Myint (Diabetes Consultant) is just amazing too.
What would you say to the other people who are thinking about participating in research?
Pauline and John together “Go for it”
You’ve got nothing to lose. One of the biggest things is that they stress you are a volunteer and can withdraw anytime, that’s the thing.
Is there anything else at all you would like to add?
I think I’m doing a bit of good for medical research
If someone hadn’t done what I’m doing now, I probably wouldn’t be here.
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